Citizen Endo: Phendo Data Sharing

Citizen Endo is a Columbia University research project led by the Department of Biomedical Informatics in partnership with patients to better understand endometriosis. This page describes our data sharing policies and collaborators for our Phendo study.

Who Is My Data Shared With?

The following people and/or agencies will be able to look at, copy, use and share your research information:

1. The research team and staff;

2. Authorities from Columbia University, including the Institutional Review Board (‘IRB');

3. The Federal Office of Human Research Protections (‘OHRP’)

4. Collaborators associated with the study. The list of research studies we link with, under your consent include:

  • ROSE Study at The Feinstein Institue for Medical Research