Welcome to ENDL

ENDL is an observational research study to understand the relationship between quality of life, the menstrual cycle, and pain. ENDL is part of Citizen Endo, a Columbia University research project to better understand menstrual-related disorders.

What's Involved?

Our research is approved by Columbia University's Institutional Review Board (IRB).

First you will download the ENDL app. You will be able to join the study after signing the consent form. We will ask you to answer a short (about 1 minute) daily survey every day for at least 90 days. We will ask you to answer a longer (about 10 minutes) monthly survey every month for at least 3 months. All information collected will be stored separately from user name using an id number.

Privacy and security of data tracked through ENDL are important to the research team. All data collected through the app is stored on HIPAA-certified servers. Only members of the research team are able to access your data, and your data is used for research purposes only.

Who's Eligible?

  • Adults who have reached the onset of menarche, that is, who have had at least one menstrual period.
  • Those over the age of 18.

  • At this time ENDL is available only for the iPhone.

    Who's Behind ENDL?

    Noémie Elhadad, PhD

    Principal Investigator

    Associate Professor in Biomedical Informatics at Columbia University. Her research is at the intersection of data science and medicine.

    Mollie McKillop, MPH, MA

    PhD Student

    PhD student in Biomedical Informatics at Columbia University. Her research is at the crossroads of mobile health, informatics, and data science.

    Development in Collaboration with the Estrin Lab at Cornell Tech