To track your day, tap the 'Track' circle icon located in the navigation bar at the base of your screen. When inside this tab, you should see two options 'Track this day' and 'Track this moment'. Track this day can be used to track quality of life, self-management strategies, menstruation, and activities of daily living. These can only be tracked once per day, but can be edited at any time.
This video uses the example of tracking ‘How was your day?’ and ‘What did you do to self-manage?’
To track this moment, tap the 'Track' circle icon located in the navigation bar at the base of your screen. When inside this tab, you should see two options 'Track this day' and 'Track this moment'. Track this moment can be used to track pain, GI symptoms, mood, bleeding, and medications. These can be tracked multiple times in the day. Anything you log in here throughout the day will be visible in 'Track this day,', so you can review the different moments you felt during the day.
This video uses the example of tracking ‘Are you in pain now?’
There are three types of treatments you can track in Phendo: hormones, medications, and supplements. To enter a new treatment, go to the “Profile” tab. You can always edit or delete any treatment later. Track hormones (e.g. birth control pills, IUDs, etc.) and supplements (e.g. vitamins, herbs, etc.) under 'Track this day'.Track medications (e.g. non-hormone prescriptions or over the counter meds you take either for endometriosis or any other reason) under 'Track this moment'.
This video uses the example of tracking 'Hormones' and 'Medications'
You can track any foods you want to. Under the profile tab you can add foods that either worsen or improve your daily experience. For those with endometriosis, this means foods that worsen or improve your symptoms or daily experience. They do not necessarily need to impact you in any specific way to qualify for tracking. For example, if caffeine gives you a headache, track it. If drinking kombucha makes your digestive system feel better than usual, track it.
Our diets can produce a wide variety of responses, and we want to capture that complexity as best we can. You can also track a food that you are experimenting with and trying to understand whether it worsens (or improves) your daily experience. If this is a food that you are trying to figure out the effect of, then make sure to track each time you eat it. The times when it didn’t feel like it affected you, answer “None” to the “Have any effect?” under the “What did you eat?” tab.
This video uses the example of tracking 'Foods that worsen symptoms'
You can track any exercises you want to. Under the profile tab you can add exercises that either worsen or improve your daily experience. For those with endometriosis, this means exercises that worsen or improve your symptoms or daily experience. For instance, if strength training makes you feel better than usual (despite typical levels of soreness), track it.
You do not need to add every single exercise you do to the list (e.g. lat pulldown, lunges, etc.) unless a specific one causes you unexpected pain. For example, if sit-ups hurt your lower back, add them to the list of exercises that worsen your symptoms. If this is an exercise that you are trying to figure out the effect of, then make sure to track each time you do it. The times when it didn’t feel like it affected you, answer “None” to the “Have any effect?” under the “Which activities were hard to do?” tab.
This video uses the example of tracking 'Exercises that improve symptoms'
If you forget to track either a moment or a day, you can go back and add them later. To add a previous moment, open ‘Track this moment’, and adjust the date and time rolodex at the top of the screen to reflect the date and time you experienced the moment. Your moment will be saved according to the time in the rolodex. Please be advised that you cannot track moments more than 2 weeks ago.
There are two ways to track something at the day level. You can either use the ‘Review’ tab to navigate to the day you want to track –tapping on the day will open the ‘Track this day’ section of the app, once here, you can add, or edit you daily experience as you wish. Also, you can go directly to ‘Track this day’ and use the date bar to navigate through the days, adding or editing where you need to. There is no limit to how far back you can track at the day level.
This video uses the example of tracking a past day and a past moment
Maybe you don’t have any period, and you don’t need to see the “Do you have your period” question every day. You can hide any question (day or moment), by going to the Settings icon on the top right hand corner under the tracking screen. When you open this, tap ‘Questions I want to track’. From here you can add or remove questions you want to track for both the day and the moment level tracking.
This video uses the example of removing the question 'Did you exercise' and 'How is your mood'
You can visualize your data in the Insights tab and on a desktop. On the app, you can see the last 30 days on the Insights tab. The last 30 days are represented as a circle.
The Inside circle: Bleeding
Red represents whether you had your period.
Pink represents other types of bleeding besides your period (i.e., spotting).
No color means no bleeding.
The Middle circle: Response to How was your day
Gr=great, Gd=good, Mg=manageable, Bd=bad, and Ub=unbearable
The Outside circle: Tracked Amount
Purple saturation indicates how much you tracked on a particular day. The more you tracked, the darker the purple.
To get a more detailed view of your data, you can click the ‘Get more Insights’ link on the Insights tab. You will be sent an authorization code to the email you registered with to access your detailed Insights via a secure web portal. Like Phendo, the web portal is secure and all your data is confidential. The authorization code we send is valid for 24 hours only. To get a new code, just click again on the ‘Get more insights’ link.
Each day you have tracked on Phendo is displayed with 'Track this day' data on the right and 'Track this moment' data on the left. Circles on the left represent period information (from light to heavy flow), and other types of bleeding (e.g. spotting = Sp). Moments from that day are listed below. Severity is indicated by lightning bolt (from yellow-mild to red-severe). Circles on the right represent how your day was (Gr=great, Gd=good, Mg=manageable, Bd=bad, and Ub=unbearable). Other data from track this day are listed below (e.g. medications, foods). When you tracked something that helped your symptoms, you will see a green emoticon, and a red one when you track something that made your symptoms worse.
It’s really helpful to know what you have experienced in the past when it comes to endometriosis. To tell researchers about your medical history, we have included links to the World Endometriosis Research Foundation’s EPHect survey in the app, which you can find under the profile tab in Phendo. Simply open the Profile tab and tap on ‘Medical history’. Here you will find a personal link to your EPHect medical history survey. It should take about 45 minutes to complete.
Yes! At the very least, answer ‘How was your day?’, or perhaps tell us which activities were hard to do (you can select ‘Nothing to report’ if the day was good). Tracking when things are good helps our researchers make better sense of your experience of endometriosis.
When in doubt, track it. We want to know all about your aches and pains, tummy issues, moods, activities, and more! We also want to know when things are going well. For instance, if everything went great today, and you didn’t have any issues in your activities of daily living, then track you day as “Great”, and select “Nothing to report” under “Which activities were hard to do?”. Giving us a complete picture of your day helps us work toward improving women’s health.
We recommend deleting the app and then redownloading it. Contact the research team if you continue to run into issues.
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