Citizen Endo is a research project led by researchers in partnership with patients to better understand, and better manage, endometriosis
In order to study a disease, we need to know what it looks like. When it comes to endometriosis, there are many different ways in which the disease can present itself in patients.
There is a disconnect between how doctors think about the disease and what patients experience on a daily basis. Bridging this gap is critical to further research on endometriosis.
We are a team of researchers at Columbia University, led by the Department of Biomedical Informatics, who make tools (like mobile apps) to collect health data, explore it, and generate meaningful insights. Success means engaging patients as active participants in our research and supporting patients with their self-management. Our research is funded by the NIH.