Phendo is an observational research study to establish a catalog of the signs and symptoms of endometriosis as experienced by you, people with endometriosis. In addition, opportunities to reflect upon your collected data may help you in managing your disease. Columbia University invites you to join this study about endometriosis to enhance understanding about the disease.
You can track your experience of endometriosis in Phendo at your convenience, track more or fewer signs, symptoms, and self management information, or stop tracking at any time.
Our research is approved by Columbia University's Institutional Review Board (IRB).
After downloading the Phendo app for either iOS or for Android, you will be able to join the study after signing the consent form. View the consent form here. We will ask you to track individual instances of symptoms, signs of the disease as they occur using the “track this moment” feature, and endometriosis symptoms and signs of the disease at a daily level through “track this day”. You will be able to review items through time as you enter them into the app. All information collected will be stored separately from user name using an id number.
Privacy and security of data tracked through Phendo are important to the research team. All data collected through the app is stored on HIPAA-certified servers. Only members of the research team and research collaborators are able to access your data, and your data is used for research purposes only. You can view a list of research collaborators here.
To track your day, tap the 'Track' circle icon located in the navigation bar at the base of your screen. When inside this tab, you should see two options 'Track this day' and 'Track this moment'. Track this day can be used to track quality of life, self-management strategies, menstruation, and activities of daily living. These can only be tracked once per day, but can be edited at any time.
This video uses the example of tracking ‘How was your day?’ and ‘What did you do to self-manage?’
To track this moment, tap the 'Track' circle icon located in the navigation bar at the base of your screen. When inside this tab, you should see two options 'Track this day' and 'Track this moment'. Track this moment can be used to track pain, GI symptoms, mood, bleeding, and medications. These can be tracked multiple times in the day. Anything you log in here throughout the day will be visible in 'Track this day,', so you can review the different moments you felt during the day.
This video uses the example of tracking ‘Are you in pain now?’
Development by Applied Informatics