Welcome to Phendo

Phendo is an app to track, manage, and understand endometriosis. Phendo is part of Citizen Endo, a Columbia University research project to better understand endometriosis.

What is Phendo?

Phendo is an observational research study to establish a catalog of the signs and symptoms of endometriosis as experienced by you, people with endometriosis. In addition, opportunities to reflect upon your collected data may help you in managing your disease. Columbia University invites you to join this study about endometriosis to enhance understanding about the disease.

You can track your experience of endometriosis in Phendo at your convenience, track more or fewer signs, symptoms, and self management information, or stop tracking at any time.

Privacy and Security

Our research is approved by Columbia University's Institutional Review Board (IRB).

After downloading the Phendo app for either iOS or for Android, you will be able to join the study after signing the consent form. View the consent form here. We will ask you to track individual instances of symptoms, signs of the disease as they occur using the “track this moment” feature, and endometriosis symptoms and signs of the disease at a daily level through “track this day”. You will be able to review items through time as you enter them into the app. All information collected will be stored separately from user name using an id number.

Privacy and security of data tracked through Phendo are important to the research team. All data collected through the app is stored on HIPAA-certified servers. Only members of the research team and research collaborators are able to access your data, and your data is used for research purposes only. You can view a list of research collaborators here.

Who's Eligible?

Individuals eligible to participate in the study include:

  • Must be 13 years old or older. Those under the age of 18 will need parental permission to participate, and parents or guardians will be asked to co-sign consent.
  • Adolescents and adults who have had at least one menstrual period.
  • Adolescents and adults who have experienced symptoms of endometriosis in the past 3 months.
  • Adolescents and adults who have reached menarche but have not experienced symptoms in the last 3 months are eligible to participate as controls.

Can I use Phendo If...

  • I take contraception or hormones?
    Yes, and you can track these in the app!
  • I have had surgery to remove my endometriosis?
    Yes! You can tell researchers about your medical and surgical history in the Profile section of the app.
  • I have had a hysterectomy?
    Yes! Some women still experience symptoms of endometriosis after hysterectomy, making tracking after hysterectomy an important part of our work.
  • I am pregnant, peri-menopausal, or menopausal?
    Yes! Be sure to complete your medical history in the Profile tab.
  • I don’t have endometriosis?
    Yes! You can participate in Phendo as a control which helps our researchers distinguish which symptoms are due to endometriosis and which are typical experiences of women in general.

Frequently Asked Questions

You can find more how-to videos and answers to frequently asked questions about Phendo here.

How to track your day:

To track your day, tap the 'Track' circle icon located in the navigation bar at the base of your screen. When inside this tab, you should see two options 'Track this day' and 'Track this moment'. Track this day can be used to track quality of life, self-management strategies, menstruation, and activities of daily living. These can only be tracked once per day, but can be edited at any time.

This video uses the example of tracking ‘How was your day?’ and ‘What did you do to self-manage?’

How to track this moment:

To track this moment, tap the 'Track' circle icon located in the navigation bar at the base of your screen. When inside this tab, you should see two options 'Track this day' and 'Track this moment'. Track this moment can be used to track pain, GI symptoms, mood, bleeding, and medications. These can be tracked multiple times in the day. Anything you log in here throughout the day will be visible in 'Track this day,', so you can review the different moments you felt during the day.

This video uses the example of tracking ‘Are you in pain now?’

Contact Us!

Have a question? Want to learn more? Email us at citizenendo@columbia.edu

Follow us on Facebook, Twitter, Instagram, and Medium

Our Team

Noémie Elhadad, PhD

Principal Investigator

Sharon Lipsky Gorman, MA, MS

Software Engineer

Adrienne Pichon, MPH

Research Coordinator

Emma Horan, BS

Research Coordinator

Development by Applied Informatics